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A BLOG ABOUT LOVE AND SHIT (LITERALLY)

Betting on Asher

December 4, 2019

There’s this moment every morning where I’m somewhere between asleep and awake, my eyes and brain are foggy, and I wait to hear the beep of Asher’s oxygen machine. Every morning I wait for it and every morning I rem...

August 16, 2019

6 weeks.

It's been 6 weeks since Asher left us, since I've held my baby, since I've felt his warmth. There is such an emptiness to life now. It's impossible to do anything without feeling just a profound absence of h...

July 2, 2019

“if love had been enough to save you, you would have lived forever”

My sweet angel finally got his wings and God called him home Monday afternoon. Although way too short, Asher had such an incredible, full life thank...

June 21, 2019

When I started this blog about Asher's story, I did so for a couple reasons. (1) Writing had always been a form of therapy for me. It helped me process my thoughts and to work through what I was feeling. I started w...

May 6, 2019

The moment my son was born, he was taken from the doctor’s arms and promptly whisked away by the NICU team. It was that very moment that began my unending gratitude for the family we never asked for: our nurses.

Firs...

April 24, 2019

As everyone knows by now, last week State Senator Maureen Walsh made a comment about how nurses must "probably play cards for a considerable amount of the day." If you have social media or have listened to the news,...

March 25, 2019

Last week marked another milestone for Asher - one year since he was diagnosed with epilepsy. None of Asher's diagnoses have been easy to handle, but epilepsy has definitely been the one that has taken the greatest...

November 30, 2018

As a special needs parent, the thing I hear most often is “I don’t know how you do it.” Depending on my day and how things are going, I always react a little differently to the statement. Most times I just shrug it...

October 29, 2018

It's been awhile since I've written about Asher and where we are at with our journey - okay, actually, it's been a lot longer than awhile. I'd like to say it's because things have been going really well and there wa...

August 9, 2018

Its been a little over two weeks since the most terrifying decision I have ever made and the 48 hours that followed while Asher recovered from surgery. Sometimes I have to pinch myself to remind myself that we are s...

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